Last September, Helen Vernon, advocate from Sefton Pensioners’ Advocacy Centre, wrote a blog post telling us about Peter (not his real name). Helen provided Peter with the advocacy support that meant so much to him. You can find the first part of Peter’s story here. Today, we find out what happened next…
When I first met Peter, he told me he had terminal lung cancer and he had 12 months to live. He contacted us because there were some issues with his accommodation and he wanted to resolve them with the housing association rather than waste his time moving, as mentioned in my earlier blog post. He was very happy with the advocacy support and so a few months later when he was having health problems he contacted me again.
Peter asked me to accompany him to an appointment, which I agreed to do. Unfortunately, his health deteriorated suddenly after Christmas and the planned surgery was cancelled. He obviously felt a sense that he needed to put things in order so he asked me to write a will for him. As an individual can write his or her own will, it was agreed within the team that I could do this for him. I explained to Peter that I was not giving legal advice but simply documenting his wishes and having them witnessed. In fact, there was very little to leave and it will be used to pay for his funeral.
Peter was admitted to hospital then a hospice, discharged home and readmitted. At each visit, I could see he was becoming frailer. One of his relatives lived abroad and I kept her up to date with his condition at his request. Before the final admission to the hospice, he spoke to me about wishing to go to a nursing home, as it was important to him to have his own television in the room and he felt the hospice was a dark place. I agreed to visit him after the weekend and prior to this visit, I researched the availability of nursing beds in the area. I arrived at the hospice and spoke to the nurse about his condition. She told me to be prepared as Peter was not in the same condition as when I had seen him on the Friday. She was right, he had deteriorated even further and his usual spark had faded.
Over the past three years I have worked with lots of service users who have been given this diagnosis and sadly, I have closed several cases because the person has passed away. However, for one reason or another this has been the first time I have had cause to visit someone in his or her final days in the hospice. Perhaps because this gentleman’s family all live abroad and so he did not have the same support networks, it was even more important that advocacy was there for him. I spoke to the nursing staff earlier this week and his relative was on her way to be with him.
He once told me “advocacy gave me a lot of hope that things would improve and they did improve” and “advocacy kept me going”. I hope in many small ways we have helped him along his journey.
Peter’s niece called me this morning to tell me that he sadly passed away on Saturday morning with his family at his side.
Helen Vernon, Sefton Pensioners’ Advocacy Centre
(Our thanks to Helen for this moving account of Peter’s end of life story and the obvious impact on Helen herself, Marie, OPAAL)